Marlo
                    
                    
                    
                    
                    
                    
                    
                        
                        
                        Brad - I am 26 and have also been diagnoised with Fibrous Displaysia.  They want to put rods and screws in me, but I keep getting told they will have be replaced every 30 or so years.  Have you found any information on what else can be done that doesn't have to be replaced.  I am a ballet dancers would would like to continue my career  -- any information would be greatly appreciated.