kay
                    
                    
                    
                    
                    
                    
                    
                        
                        
                        Dear K,     I've had Lymphedema of for 12 years.  It is controlled with a pressure machine and elevation.  I am an RN and did a good deal of research but I haven't really seen any information to help you other than to protect your face from any infection or even sunburn.  I WOULD SUGGEST YOU CONTACT A LARGE UNIVERSITY TEACHING HOSPITAL.  You may have very good doctors but the big hospitals usually have access to a lot more experts and information.  If you have received any new ideas of information on-line please post it.  Good Luck.                               Kay