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BLOOD DISORDERS

Susan Smith

Message 9 of 12 Previous Next



It could be anti phospho lipid syndrome. Basically, it's the opposite of a hemophiliac. I have this disorder and I am trying to get information on it so I can get treated. My doctor had never heard of this until my high risk pregnancy doctor discovered I had it. I was treated for my pregnancy, but once I had the baby, I have gone untreated. My brother has the same disorder as I have, and at 43, he has had two heart episodes which were misdiagnosed until they checked him for Anti phospho lipid Syn., and they discovered that his heart was throwing off massive amounts of clots that have lodged in his legs and lungs. He is now on cumiden. I am searching the internet for information on this disorder so I can get treated before it's too late. There just isnt enough information about it for people to be informed about this potentially deadly disorder. The hospital that treated my brother was Brigham's and Women's hospital in Boston, MA... perhaps you could contact them for information. Feel free to email me if you like.

 


   
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