J.K.
                    
                    
                    
                    
                    
                    
                    
                        
                        
                        I am 51 years old, live in Israel and have "Progressive Neurocerebalar Ataxia".  It is not exactly Friedrich Ataxia. Being treated with muscle relaxants so I can continue walking. The spasticity  (mainly, hardnes of the lower limbs is increasing very slowly and the cold weather  does not help me at all. Through a person who replied to my message I got the E-mail  address of a support and information group. The address is:  fapginfo@fortnet.org  I have not been in contact with them yet.  Hope this will help you.