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OSTEOGENESIS IMPERFECTA ( BRITTLE BONES)

Julie

Message 5 of 25 Previous Next



I have a 4 year old daughter and a 6 year old son that both have OI. They have both had 8 fractures. They will start taking fosamax in a few weeks. My son will be getting leg braces also to try and prevent fractures. We have really struggled to make people realize that they do have a disease have any of you had this problem also? If you did how did you handle it?

 
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