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desmin storage myopathy

Stacey Broussard

Message 6 of 7 Previous Next



Hello Bonnie, I saw your post in reponse to my mothers post, about the 3 yr old with Desmin Storage Myopathy. Her name is Jaime, and I am her mother. She was diagnosed with DSM when she was 1 yr old. I would love to talk to you about your nephew, please contact me.

 
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