Rosalie
                    
                    
                    
                    
                    
                    
                    
                        
                        
                        I have had this illness for the past 5 years...it is devastating on going illness that can be very hard to deal with.  Anyone who would be interested in talking with me post a message her or email me rlbusono@aol.com I will be happy to hear from you...as I have been searching the web trying to find others affected with this disorder.  Take Care