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dystonia

JAN

Message 2 of 2 Previous



HI, I WAS FINALLY DIAGNOSED AFTER 3 YEARS OF DOCTORS NOT KNOWING WHAT WAS WRONG. ONE NEUROLOGIST DIAGNOSED ME WITH MULTIPLE SCLEROSIS AND AFTER 2 YEARS, FOUND OUT HE WAS WRONG. I HAVE HEMIDYSTONIA (RIGHT SIDE). IT'S LIKE GENERALIZED, BUT CONFINED TO ONE SIDE OF THE BODY. I RECENTLY HAD A BACLOFEM PUMP IMPLANTED TO HELP ME. I ALSO TAKE SINEMET AND KLONOPIN TO HELP THE SYMPTOMS. IF I CAN BE OF ANY HELP, PLEASE FEEL FREE TO EMAIL ME. I AM THE CO-LEADER OF MY SUPPORT GROUP IN THE SOUTH SUBURBS OF CHICAGO. JAN
12

 
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