julie
Hi. Your poor baby! I feel for him. I am a chiari malformation person too. I too had decompression surgery ('95). However, I have learned through personal experience and through my doctor (head of neurology and professor) that sometimes the surgery doesn't work. I still have terrible headaches and pain. He told me that it is quite common that the surgery will not work, as common as 50%. Maybe your son's surgery didn't work? He probably doesn't have migraines but has Chiari headaches. Have you been to any Chiari websites? You'll see there are so many people who still suffer after surgery. Wish you and your son luck. The only thing worse than a Chiari headache is watching your child in pain!! Love to you, Julie