rita719
I would be very interested in getting the names/#'s from you mentioned in your post. I have been suffering from this debilitating problem since Nov 2000, without proper diagnosis. Every doctor (and there hve been 15-20 of them) simply kept referring me to yet another doctor, because they didn't know what to do with me since I can't take pain meds by mouth, so off they send me to another specialist. I was finally diagosed with pirifomris just last week and the idea that there are doctors out there who might actually offer help is the best news I've had in nearly 4 years. Please, yes, do send me any info you may have. It would be greatly appreciated by me, my husband, and most certainly by my beloved 6 year old son, who'd love to have his active mommy back.