Susan
                    
                    
                    
                    
                    
                    
                    
                        
                        
                        Roger,  Unfortunately I don't have any real advice or suggestions.  Recently I had read about some sort of immune therapy they were doing at a Tampa Medical Center and had read a couple of stories of individuals that reported success, but don't know or remember much more about it. I did however want to offer my prayers and sincere wishes for your son.  Also, the previous poster offered a suggestion for a treatment I'd like to find out about.  did you get his email or the info?  If you did and you're able, please share the info.    Best wishes,  Susan