Dierdre
I also had Reflex Sympathatic (not to the extreme that you have it ) And also you are fortunate to have found a doctor who recognizes the condition, some don't, and think it's all in your head. Any way I found that unfortunatley there is nothing you can really do for the condition. I had it in my ankle and foot. My symtoms were, at times intollerable, but they finally waned after about 5 years. But 2 years ago I developed some symtoms in my left side of my head (and ear included) that doctor after doctor has yet to be able to explain.. I think it's RSD. I suffer daily and can sympathise with you. Hope it just goes away or they find something to help you !!