Patti
                    
                    
                    
                    
                    
                    
                    
                        
                        
                        Hi Tammy,  It sounds as though you have a clear cut case of primary lymphedema.  I would search out a physical therapist in your area who specializes in lymphedema treatment.  You just need a referral from your general physician.  The treatment is very effective, but you will need to understand that it will involve life-long control methods.  If it is lymphedema and you do not treat it, it can progress to elephantiasis.  Move quickly on this one.