Jeannie
I hope your grandson is doing well. I had a son 4/18/00 that has hemophilia B severe. My father had hemophilia so I new it ran in the family. My son was tested invitro so I had some time to research and prepare as best as one can. Is your grandson's parents involved with a Hemophilia treatment center? They have been a godsend to us. They help us prepare and have a plan for my sons future. We have not had to deal with a bleed yet but we hope with all we have learned we will be able to deal with it well. We already have a plan to start Jacob on a preventive treatment plan as soon as he gets his first bleed. If you or anyone in your family needs info or just to talk please email me. Jeannie Chambers