gail depratto
yvonne, my daughter was diagnosed with a brain stem glioma at the age of 14. She is now 32. She too is coverd from head to toe with these nodule tumors. At this time she is recovering from a major surgery, a paraphyrngeal space tumor, the size of a surgeons fist, he tells me. She has lost her voice, and there will be more surgerys. There is so much I could share with you, and you sound like you could use a friend that can understand where you are coming from. You have to believe that you are at the stage of the disease that my daughter is.