Anndrette
Hi, my daughter Janelle was diagnosed with NF when she was 5 she is now 17, she has been fine other than the growth of tumours, until now where hse has been found to have a dystrophic dislocation of her spine, caused by a scoliosis. It is a frightening and often unknown disorder and if you'd like to email me at at any time I'd be only to happy to offer support where I can. Regards Anndrette Davies