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NEUROFIBROMATOSIS

YVONNE

Message 1 of 14 Next



MY DAUGHTER WHO IS 11 WAS DIAGNOSED WITH NF1 ABOUT 2 YEARS AGO. SHE HAS HAD A SPINAL SURGERY TO REMOVE A TUMOR AND HAS HUNDREDS GROWING THROUGHOUT HER BODY. SHE ALSO HAS TUMORS GROWING AROUND HER HEART WHICH IS CAUSING HER HEARTBEAT TO BECOME SOMEWHAT IRREGULAR. IF THERE IS ANYONE THAT HAS THIS DISEASE OR KNOWS SOMEONE WITH THIS DISEASE PLEASE E-MAIL ME. IT IS VERY HARD TO FIND ANYONE THAT UNDERSTANDS. I COULD REALLY USE THE SUPPORT.

 
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