Robynne Siegert
12 months ago my twin brother was diagnosed with amyloidosis. It has mainly effected his heart. Though his skin and muscles are also effected. He is being treated with chemotherapy. It has been a long grueling journey, and we live in hope and optimism that he will survive. I found this wonderful doctor to email. His name is Dr P N Hawkins Immunological Medical Unit Hammersmith Hospital Du Cane Rd LOndon W12 ONN HIs email address is:~ pnhawkins@ic.ac.uk I am sure that you can ask him for his advice, and he will possibly offer to liase with your local physician At the Hammersmith hospital he has treated many many patients with this disease. I wish you well with your path through this disease. Kind Regards Robynne