Jan
Dear Friends, First I want to apolize for not getting back to you. I forgot that I had gotten in here to be honest until tonight when I stumbled in here. The other is that I lost my beloved husband Del, this past July 14th. after his long and hard battle with PSP. I am bound and determined to get the Medical Field aware of PSP and hopefully others will be spared the heartbreak of watching their loved one "Trapped in their Body" and suffering. Del got where he had to have a feeding tube in March and in April couldn't urinate. I had to straight cath him every 3-4 hrs. I spoke to Dr. Golbe and this is common in PSP patients. The brain isn't getting the message to the bladder; even though he knew he had to go. As for the swallowing, with or without the feeding tube; they can't swallow their Saliva and it builds up and then becomes so thick; you have to go in and keep the mouth clear. The suction machine can't even pull it out; as it becomes thick and elastic. Again I want to say I'm sorry and hope that you don't think I didn't care. Jan