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porphyria

Kris Reid

Message 2 of 5 Previous Next



I AM POSTING THIS MESSAGE ON BEHALF OF MY BROTHER-IN-LAW, DON. HE WAS JUST DIAGNOSED WITH PCT- PORPHYRIA CUTANEA TARDA. I WOULD LIKE TO RECEIVE E-MAIL FROM ANY OF YOU WITH THIS DISEASE. AS YOU KNOW, IT IS VERY RARE AND EVEN HARDER TO DETECT. WE ARE SEARCHING FOR SUGGESTIONS ON MEDICATIONS, GEANEAOLOGY AND OTHER RELATED INFO ON PCT. THANK YOU ALL AND GOD BLESS YOU.

 


   
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