KAREN
I WAS DIAGNOSE 1 YR AGO WITH ARNOLD CHIARI MALFORMATION AND MY NEUROSURGEON DOESN'T WANT TO DO SURGERY UNTIL I START SHOWING PERMANENT NERVE DAMMAGE. I REALLY FEEL THAT HE MAY NOT KNOW THAT MUCH ABOUT THE SURGERY AND WAS WONDERING IF THERE IS ANYONE WHO HAS THIS PROBLEM WHO LIVES IN THE CENTRAL FLORIDA REGION. I AM LOOKING FOR SOMEONE WHO HAS HAD EXPERIENCE WITH THIS PROBLEM. I HAVEN'T LOST A LOT OF STRENGHT, BUT CAN'T WORK DUE TO ME HAVEING TO BE ABLE TO LAY DOWN AND REST OFTEN. I HAVE A 13 YR OLD DAUGHTER AND HAVE ALWAYS BEEN VERY INDEPENDENT. THE DR'S TELL ME I JUST NEED TO SLOW DOWN. I DON'T KNOW HOW TO DO THAT WITH A CHILD AND A HOUSE TO TAKE CARE OF. PLEASE, PLEASE LET ME KNOW IT ANYONE KNOWS ABOUT THIS PROBLEM. YOU CAN E-MAIL ME AT KARENMCCORMICK@MSN.COM. YOUR HELP IN RESEARCHING THIS PROBLEM WOULD BE GREATLY APPRECIATED. THANK YOU