Sandy Scott
                    
                    
                    
                    
                    
                    
                    
                        
                        
                        Joan, I have also been recently diagonosed   with fibrous dysplasia of the skull base and   cervical spine after being in pain 1.5 years.   It seems it is rare and hard to find alot of   info. on it.  I am trying to find doctors that   are familiar with it. Was wondering if you have   had surgery and also how are you feeling?