Hobbits
                    
                    
                    
                    
                    
                    
                    
                        
                        
                        Been There done That. It's frustating to put it mildly.  It sounds like you haven't found the right medications or treatments yet. Also a good team of doctors.  Have they been able to give you anything to help the sleep?  If you can get some deep sleep it really helps. Besides meds, I also use a lot of biofeedback such as self hypnosis, imagery, etc.  I was just put on one of the diabetes meds. I thought my stomach was going to burn up so now I take a stomach med to control that.  Do if you don't and don't if you do.  But it does help.  Also see if you can find a good support group near you. (not a pity party).  Of ten times they can help with information and just knowledge (it's the little things that help).  Good luck.  If you want to Email me I'm at  Hobbits@mediaone.net. Take care.