rhonda
my daughter was diagnosed with marfans when she was 3 she just turned 5 in march. she started having chest pains so we took her to the dr. and her anurism has dilated 11mm. in 21/2 months she has to undergo surgery on 7/11 for aortic root replacement and aortic valve replacement. i was just wanting to know or just needed somebody to talk to who has marfans because all of this is about to make me go crazy. so please contact me if you would.