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                        Chris,        I know exactly how you feel. I've been with this disease for almost 8 years at first doctors looked at me like we have never seen this before and thats a scary feeling when the doctors dont know what to do. Now thankfully I'm doing better although recently I am having problems with my eyes. It's ongoing problems I'm sure you can relate with. If you would like to talk e-mail me.  Destino1122@aol.com