anne mcintire
my daughter was diagnosed with RSD 3 years ago in 1988 when she was 11 years old. No one here knew much about it much less what to do. they tried physical therapy but it just accelerated the condition from just in the right foot to up to her right knee in the first six months. she went to a pain management clinic at vanderbilt but here too they had no treatment for her. they sent her for counseling to learn relaxation techniques and to cope with the stress and that helped some. but it only lasted 3 months. now they have sent her to another pain specialist as it has now progressed up to her back and we thought to the other leg. this doctor said the other leg does not have rsd but is tired for overuse because of the bad leg. she was homebound schooled last year but this year she goes to school but is in a wheel chair. they are going to start the nerve blocks after easter on her but are giving here new medications for depression and spasm/seizures that have started over the last few months along with her regular pain medication she has been on all along. it has been very hard to see her hurt and not be able to do like her sister who is just 1 year older and it bothers her too. she has become more limited as her asthma has worsened and had to have a tonsillectomy this past summer. she is a very bright girl and knows alot about her condition. she has found a teen support on the internet and this has helped her cope. we are hoping that the nerve blocks will do something to relieve her pain. sorry to ramble but i know how you feel watching your daughter and i know it is rough, very rough.