HELEN BIRCH
OUR SON THOMAS IS 17MONTHS OLD AND HAS JUST BEEN DIAGNOSED WITH LEUKODYSTROPHY. HE HAS A LARGE HEAD CIRCUMFERENCE 54.4CM. WE ARE STILL AWAITING SOME BLOOD TEST FOR ALD BUT OUR CONSULTANT DOES NOT SEEM TO THINK IT IS THIS. HIS MRI SCAN DOES NOT LOOK LIKE ALEXANDERS DISEASE BUT IT STILL CANNOT BE RULED OUT. IS THERE ANYONE OUT THERE WHO CAN HELP US? WE WILL TRAVEL ANYWHERE IN THE WORLD FOR HELP. WE JUST WANT THOMAS TO HAVE A CHANCE. FROM HELEN IN ENGLAND.