Che'ri
Hi everyone! I have syringomyelia. I was diagnosed in 1999.. I have been doing very poorly lately. I live in texas. Anyone out there with this horrible painful disease, feel free to write me. I was in a wheel chair, but I have fought my way out of that. Now I use a walker or a cane. And on good days I walk without either. Lately the good days have been far and few between. I have had so much pain I can hardly sleep. Not even with all the pain meds. My feet seem to be the worst. Anyone else with that same problem.? I also have had a stroke that they think might have been caused by this. Has anyone else out there had a stroke, that also has syringomyelia. Feeling poorly today, Che'ri