Helen
Dear Judy, I hope you soon get some results. Have you been to see a rheumatologist yet? I use the exact same term to describe my myopathy. Every morning I wake up and I feel like I have just done the London Marathon. Like I said I go to Hope hospital on Oct 8th, I'm on my third consultant and my third hospital,I will post a reply and let you know how I get on.Take Care HELEN. MSG for BJ If you have read this message could you post a reply and send me some of those sites that you mentioned thanks .