Marcia Saul
                    
                    
                    
                    
                    
                    
                    
                        
                        
                        Recently, I was diagnosed with this disease.  I am responding nicely to Prednisone and we are starting to reduce my daily intake.  My sed rates remain lowered! I understand that I will probably remain on a maintenance level for some time.  However, I still have the pain in my upper back and shoulders.  Would like to know/ hear from from others who are dealing with this condition.