Mom2CS
Hi, I can relate to your worry and concerns about your daughter. I am part of a support group that is specifically for families who are, or have been, affected by their child's or a loved one's craniosynostosis. We have many families who can share their experiences and/or are currently seeking support from others who understand this affliction and the impact that it has on our children and families. We also have a cranialfacial nurse specialist who can answer your more medical related questions. This support group is part of a non-profit org. - CAPS (Craniosynostosis and Parents Support) Inc. (www.CAPS2000.org) Please email me if you would like more information on CAPS or our (Onelist) email list support group. (dtskms@aol.com)