Shanon
Hi! There is a support list on MSN communities that has given me a lot of information. It is called PolandsSyndromeSupport. You can use it if you have a hotmail account. That's free. My 14 year old son has it. I can't speak for girls, but the majority of people on the list are women or girls. Take Care and God Bless, Anthony's mom a.k.a. Shanon