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Poland's syndrome

Danny

Message 47 of 48 Previous Next



Dear Linda, I am a 39 yr old man with PS. I have had a "VERY" hard time dealing with this. My right pectoral is missing, and the right side of my body is slightly under-developed. I have just recently found the name of what I have and am investigating extensiveley the causes and remodies for the disorder. I would like to see a support group made available, so people like you and me may someday speak face-to-face. It hasn't been easy. I'm sure that if I would have had support when I was younger, that I would have less psychological damage. I really think that that is the worst damage, don't you? Contact me if "anyone" would like to talk or listen.

 


   
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