Liz
My daughter has Poland Syndrome also. It is named that because the man who first wrote a medical paper on it was named Poland. My daughter and I would like to help you in any way we can. She is now 17 and we've been there, done that. PLEASE write to us, we have alot to talk about. You and your daughter are not alone and I can say I KNOW how you feel. God bless you both.